Sickle Cell and Thalassaemia

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The Service promotes public and professional awareness of Sickle Cell, Thalassaemia and related blood disorders in order to enable the development of an effective and efficient service for individuals, their families and the Community as a whole.

We work in collaboration with the specialist Children’s haemoglobinopathy service at Birmingham Children’s Hospital, Haemoglobinopathy services at Royal Wolverhampton Hospital Trust, Walsall Manor Hospital and the child’s GP to ensure that (a) families are notified of the haemoglobinopathy diagnosis (b) children enter treatment as soon as possible after their condition is diagnosed. 

This includes offering counselling and advice to individuals and the child’s parents/guardians 

Delivering services against the NHS Sickle Cell and Thalassaemia Screening Programme: 

Counselling Services linked to the screening programmes

  • Antenatal Screening 
  • New-born Screening 

Community Haemoglobinopathy services for children, young people and families

  • Supporting parents to become experts in managing their child’s care and supporting children and young people to become experts in managing their own care
  • Supporting the planning and coordination of care for children and young people
  • Supporting parents in their caring role
  • Supporting parents and families to access other services to assist in addressing the wider determinants of health

Community haemoglobinopathy services for Adult patients and carers 

  • Supporting patients to become experts in managing their own care
  • Supporting the planning and coordination of care for adults
  • Counselling and access to psychological support to children, parents, families and adults affected by haemoglobinopathy
  • Supporting patients and carers to access other services to assist in addressing the wider determinants of health

Liaison and networking with other haemoglobinopathy service providers, primary and community healthcare services and others

Training, Education and support for other professionals in health, social care, education and other relevant services

  • Public Information, Education and Awareness Raising